Chronic kidney disease - Living with (2024)

Many people with chronic kidney disease (CKD) are able to live long lives without being unduly affected by the condition.

Although it's not possible to repair damage that has already happened to your kidneys, CKD will not necessarily get worse.

CKDonly reaches an advanced stage ina small proportion of people.

But even if your condition is mild, it's important to take good care of yourself to help stop it getting worse and reduce your risk of other health problems, such ascardiovascular disease.

Looking after yourself

Take your medicine

It's very important that you take any prescribed medicine, even if you do not feel unwell. Some medicines are designed to prevent serious problems from happening in the future.

It's also useful to read the information leaflet that comes with the medicine about possible interactions with other medicines or supplements.

Speak to your care team if you have any concerns about the medicine you are taking, or if you are experiencing any side effects.

Check with a doctor or pharmacist if you plan to take any over-the-counter medicines such as painkillers or nutritional supplements. These can sometimes affect your kidneys or interfere with your prescribed medicine.

Read more about over-the-counter medicines and kidney disease on the National Kidney Federation website.

Have a healthy diet

Ahealthy, balanced dietcan help improve your general health and reduce your risk of developing further problems.

Abalanced diet should include:

• plenty of fruit and vegetables– aim for at least5 portions a day
• meals that includestarchy foods, such as potatoes, wholegrain bread, rice or pasta
• somedairy or dairy alternatives
• some beans or pulses, fish, eggs, ormeat as a source of protein
• low levels of saturated fat,salt andsugar

You may also be given advice about dietary changes that can specifically help with kidney disease, such as limiting the amount of potassium or phosphate in your diet.

Exercise regularly

Regularphysical activity can also help improve your general health.

Do not be scared to exercise. Exercise is good for anyone with kidney disease,however severe.

Not only will it boost your energy, help you sleep, strengthen your bones, ward off depression and keep you fit, it may also reduce your risk of problems such as heart disease.

If you have mild to moderate CKD, your ability to exercise should not be reduced. You should be able to exercise as often and as vigorously as someone the same age as you with healthy kidneys.

If your condition is more advanced or you're already on dialysis, your ability to exercise is likely to be reduced and you may become breathless and tired more quickly.

But exercise is still beneficial. Start slowly and build up gradually. Check with your doctor before beginning a new exercise programme.

Want to know more?

• Kidney Care UK: Lifestyle – diet, fluids and exercise

Stop smoking

If you smoke, stopping smokingcan improve your overall health and reduce your risk of many other health problems.

Speak to a GP or NHS stop smoking service if you need help quitting. They can provide support and, if necessary, prescribe stop smoking treatments.

Limityour alcohol consumption

You may still be ableto drink alcohol if you have kidney disease, but it's advisable not to exceed the recommended limitsof more than 14alcohol units a week.

Speak to your GP or care team if you find it difficult to cut down the amount of alcohol you drink.

Find out more about cutting down on alcohol.

Get vaccinated

Kidney diseasecan put a significant strain on your body and make you more vulnerable to infections.

Everyone withthe conditionis encouraged tohavethe annualflu jaband the one-off pneumococcal vaccination.

You can get these vaccinations at your GP surgery ora local pharmacy that offers a vaccination service.

Regular reviews and monitoring

You'llhave regular contact with your care team to monitor your condition.

These appointments may involve:

• talkingabout your symptoms– such as whether they're affecting your normal activities or are getting worse
• a discussion about your medicine– including whether you are experiencing any side effects
• tests to monitor your kidney function and general health

It'salso agood opportunity to ask any questions you have or raise any other issues you'd like to discuss with your care team.

You may also want to help monitor your condition at home– for example, by using a home blood pressure monitor.

Contact your GP orhealthcare team ifyour symptomsare gettingworse or you develop new symptoms.

Relationships and support

Coming to terms with a condition such as CKD can put a strain on you, your family and your friends. It can be difficult to talkto people about your condition, even if they're close to you.

Learning about CKD may help you and your family understand what to expect and to feel more in control of the illness, instead of feeling that your lives are now dominated by CKD and its treatment.

Be open about how you feel, and let your family and friends know what they can do to help. However, do not feel shy about telling them that you need some time to yourself, if that is what you need.

Get support

Your GP or healthcare teamcan reassure you if you have questions about your CKD, or you may find it helpful to talk to a trained counsellor, psychologist or specialist telephone helpline operator. Your GP surgery will have information on these.

Some people find it helpful to talk to other people with CKD at a local support group or through an internet chat room.

Want to know more?

• Kidney Patient Guide: The KPG forum
• National Kidney Federation: Helpline

Sex and pregnancy

Sex

HavingCKD can affect a sexual relationship. Some couples become closer after a diagnosis of CKD, while others find their loved ones are affected by worries about how they'll cope with the illness.

Both men and women may have issues about body image and self-esteem, and this can affect a relationship.

Problems such aserectile dysfunction and reduced sex driveare also fairly common in people with CKD.

Try to share your feelings with your partner. If you have problems with sex that do not get better with time, speak toyour care team. Treatment and support is available.

Want to know more?

• Kidney Care UK: Sexual health and contraception

Pregnancy

If you have mild to moderate kidney disease, it's unlikely your condition or its treatment will affect your chances of having children.

More advancedkidney disease may affecta woman'speriods and reduce a man's sperm count, which can make it more difficult to get pregnant, although this does not mean you will not be able to have a child.

It's important to usecontraception if you do not want to get pregnant.

If you do want to try for a baby, it's a good idea to speak to your healthcare team for advice first. There may be risks tomother and baby, and changes to your treatment or check-ups may be necessary.

Want to know more?

• National Kidney Federation: Kidney failure and having children

Work, finances and benefits

Can I continue working?

If you're well enough, you can keep working for as long as you feel able.

Talk to your employer as soon as you feel your condition is affecting your ability to do your job so you can find a solution that suits both of you. For example, it may be possible for you to work part-time.

TheDisability Discrimination Act1995 requires employers to make reasonable adjustments to help a person with a disability.

This might, where possible,include changing or modifying tasks, altering work patterns, installing special equipment, allowing time off to attend appointments, or helping with travel to work.

What happens if I can no longer work?

If you have to stop work or work part-time because of CKD, you may find it hard to cope financially.

You may be entitled to one or more of the following types of financial support:

• if you have a job but cannot work because of your illness, you are entitled to Statutory Sick Pay from your employer for up to 28 weeks
• if you do not have a job and cannot work because of your illness, you may be entitled to Employment and Support Allowance
• if you're aged 65 or over, you may be able to get Attendance Allowance
• if you're caring for someone with CKD, you may be entitled to Carer's Allowance
• you may be eligible for other benefits if you have children living at home or a low household income

Want to know more?

• Kidney Patient Guide: Finances
• MoneyHelper
• Kidney Care UK: Benefits

Holidays and insurance

If you have mild CKD or you've had a transplant, going on holiday should not pose additional health problems, whether you're staying in the UK or going abroad.

Speak to your care team before you travel, and make sure you take enough medicine with you to cover your trip and some back-up medicine in case you end up needing to stay away from home for longer than planned.

If you're on dialysis, you can still enjoy holidays if you book your treatment before you go away.

If you want to travel to another part of the UK, discuss your plans with your renal unit as early as you can so they can arrange dialysis at a unit close to your destination.

In many parts of the country, the lack of facilities restricts the freedom of patients to travel, butKidney Care UK's Dialysis Freedom service runs a holiday dialysis "swap" scheme to help with dialysis availability in other areas.

If you're going abroad, it may be easier to arrange dialysis at short notice as some overseas centres have more facilities, although holiday destinations may get booked up early.

It's a good idea to take out holiday health insurance in addition to carrying the Global Health Insurance Card (GHIC) – find out more about the GHIC on the Staysure website. Anyone with kidney disease should declare it as a pre-existing medical condition on standard insurance application forms. It may exclude you from some policies.

Want to know more?

• Kidney Care UK: Travel insurance